RN Care Manager(Navigator) Rare Hematology, Gene Therapy & Translational Research
$81,723–$104,208 year
On-siteBurnet, Texas, United States
Job Summary
Coordinate complex care for pediatric patients with rare inherited bone marrow failure syndromes, genetic hematologic disorders, and emerging gene therapies like Casgevy and Lyfgenia. Serve as the primary liaison among eight physicians, genetic counselors, and multidisciplinary teams to navigate diagnostic evaluations, insurance authorizations, and treatment scheduling. Facilitate communication across the continuum of care, ensuring timely access to therapies such as rituximab and IVIG while managing referrals from external institutions. Provide patient and family education on diagnoses, clinical trials, and post-acute services, and actively identify barriers to care to promote an exceptional patient experience.
Required Qualifications
- Current Registered Nurse license in the State of Ohio
- Bachelor of Science in Nursing (BSN)
- Minimum of five years of professional nursing experience
- Strong clinical judgment and critical-thinking skills
- Demonstrated experience coordinating care for complex patients
- Excellent organizational, communication, and problem-solving skills
- Ability to independently prioritize and manage multiple complex patient needs
- Ability to effectively collaborate with physicians and multidisciplinary teams
- Strong patient advocacy and family-centered care skills
Desired Qualifications
- Pediatric hematology/oncology experience
- Experience with rare diseases or genetic hematology
- Experience with bone marrow failure syndromes
- Experience with gene therapy or cellular therapy
- Care management, nurse navigation, or nurse coordinator experience
- Experience coordinating clinical trials or translational research
- Experience with insurance authorization and financial coordination
- Experience with stem cell collection or transplantation
- Certification in pediatric nursing, oncology, care management, or a related specialty
Hiring someone like this?
Get your role in front of qualified candidates on Sorce.