Research Program Coordinator I - Sickle Cell Disease (CIBMTR)
On-siteMilwaukee, Wisconsin, United States
Job Summary
Coordinate daily administrative activities for a new Sickle Cell Disease study focused on long-term follow-up of individuals who received hematopoietic stem cell transplant or gene therapy. Organize internal and external meetings, site visits, and educational events while serving as a liaison with community organizations, advocacy groups, and partner institutions. Maintain program databases, participant records, and documentation to ensure data accuracy and regulatory compliance. Collaborate with clinical teams to support protocol activities, participant recruitment, and retention by facilitating communication between patients, physicians, and researchers. Collect, track, and report program data to prepare dashboards and updates for investigators and stakeholders.
Required Qualifications
- Bachelor's degree
- 2 years experience
- Knowledge of computers
- Microsoft Office
- quantitative and (potentially) qualitative research methods
- survey development
- mathematics
- documentation
- records management
- Organization
- time management
- interpersonal skills
- communication skills
- problem-solving skills
- Ability to occasionally lift moderate weight materials
- Ability to stand or walk continuously
- Ability to detect and translate speech or other communication
- Ability to distinguish colors
- Ability to perceive relative distances between objects
Desired Qualifications
- Experience working with individuals living with sickle cell disease or other chronic conditions
- demonstrated experience serving as a patient advocate
- experience engaging with patient communities
- Knowledge of the challenges faced by individuals and families affected by sickle cell disease
- Experience with Sickle Cell Disease community (professional or volunteer)
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